It’s been a while since I wrote a personal update. I have recently been extremely drained and weak, so haven’t been very social or active online. My primary focus this month was on my itching. I wanted to try to get it under control as it was really getting me down, much more than my ME/CFS does. I was in tears and so very frustrated. The scratching was utterly exhausting and to top it off, I caused myself a massive ME/CFS flare too!Continue reading
It’s almost noon and I’m still in bed. I just Sat up actually when my sis brought me a nice big mug of decaf with coconut oil and quercetin in. Part of my morning routine now, though I’m starting to wonder whether coffee is one of my histamine triggers, despite being decaf. I might stick to golden tumeric milk instead.
I had been doing so well for so long that I had almost forgotten how bad these flares can get. It can be discouraging when you are reminded so unexpectedly of the horrible passenger you carry with you always.
This ME/CFS might be managed or worked around for a time, but it does come back to show itself from time to time, makes sure you remember it’s still there and just how strong it is.Continue reading
Have you been experiencing itching, rashes or hives since changing your diet? Have you had no luck in identifying an allergen or trigger despite elimination diets and eating clean? If you have recently switched to a low carb diet, it is very possible that you are experiencing an allergic reaction, though you might not be allergic to individual items, it might be a little more complicated than that.
Something I recently discovered, which surprised me, is that people can be histamine intolerant. Many people aren’t aware that histamine is present on all our food, even the fresh, natural produce and meat you buy from your local supermarket. Not only can ingredients contain histamine, but some liberate histamine already present in the body.
Histamine is a compound that is produced by our bodies as well as by the bacteria that grows on our food as it ages. It is released when there is inflammation or an allergen introduced to the body. It has healing properties, but some people are sensitive to it. Anybody who has ever suffered from seasonal allergies will know what that feels like.Continue reading
I went to the doctor again this week. This is the fourth doctor I’ve seen about my itching. She was lovely and also thinks it’s an allergic reaction after examining the bumps with a magnifying tool. She initially thought folliculitis, but changed her mind upon inspection.
So I’m taking Fexofenadine and Ranitidine daily for the allergic reactions I’m having constantly. They don’t go away anymore. They used to just last about an hour then go away, this week has been non-stop.
Hives, rashes and insane itching and burning. It’s now all over my body. It calms down at times and then flares up after meals and with heat and stress. So if I’m in bed it flares, and dressed too warmly, sit in the sun, argue with somebody or eat certain foods, etc.
Doctors seem to be certain it’s allergies, but haven’t sent me for any tests yet. So still unsure what’s causing it, though the low histamine diet did provide some relief for a few weeks.
The current flare started after reintroducing a couple of things last week. Going to have to stop them again and see if it subsides.
This morning the hives and itching woke me at 4.20 and I was scratching non-stop for about 2 hours before I fell back asleep. The sun was already rising.
I then woke again with another flare around 9. It’s past noon now and it’s still quite itchy and the hives are not subsiding yet.
It’s super debilitating. Being so itchy that you can’t think straight or do anything but rub or scratch your skin all over because you need relief, even if it causes pain, the pain is a distraction from the itching. I now have bruises all over too from scratching so hard.
This of course means I’m exhausted because scratching requires physical exertion which causes payback for anybody with ME/CFS. So as you can imagine, I’ve not been very productive for the past week. Spending most of my energy on scratching, digesting a meal and then scratching again…
Distraction is my best weapon at this point as the pills aren’t really taking it away yet. So I’ve been watching a lot of Netflix and TV this week. It does help to keep my mind off it.
I added apples and sweet potato to my diet in small quantities this past week, although they’re not Keto friendly, but they contain quercetin which is a natural anti-histamine. I’ve also added thyme which apparently helps prevent anaphylaxis.
Have you ever gone through anything like this? How did you relieve the itching? Any help or advice would be greatly appreciated.
UPDATE: find out how I’m reducing the itching as well as the rashes and hives that later appeared, here.
I’m still struggling with this allergic reaction that started in February. I initially thought it was the Keto rash and tried coming off the ketogenic diet to get rid of it, without success.
I then thought histamine intolerance, so I went low histamine, which cut out a huge amount of staples for me, including my main fat sources. So I added dairy back in.
This full body itch persists, I’m not sure what it is and it just won’t go away!
So I’m redoing my food list. I’m going dairy free again, nut free, caffeine free, as well as low histamine and Keto! It’s going to be tough.
I’m going to see if I can eliminate the itch by identifying the allergen. The doctors just prescribe antihistamines and I was told not to change my diet, but frankly I’m sick of them prescribing bandaid solutions rather than figuring out what the cause is. Continue reading
I have been on the paleo-ketogenic diet for exactly 8 weeks now. As many of you know, I am using this diet as a way to help manage the symptoms of my severe ME/CFS (read more about my CFS here). Things are going well and I have seen some improvements in a few areas already.
People who switch to the low carb, high fat way of life often see great results in weight management and general health, so I am pleased that I also saw such improvements despite my chronic condition. I have less general pain, the heaviness that made moving very difficult and painful has lifted quite a bit, I feel lighter with more mental clarity, I don’t suffer from the munchies anymore, and when I brush my teeth, I no longer get heart palpitations and breathlessness!
This past week has been rather frustrating, though, I started itching all over my body!
I had been itching previously too, but put it down to the fact that I wasn’t showering very frequently due to my CFS.
With the paleo-ketogenic diet I have actually improved my condition slightly and have been able to shower every 3-4 days rather than only once a week. This is when I realised that the itching wasn’t related to the showers. I’d itch more in the evenings, even on days I’d already had a shower. Very strange!