Blue emojis with quizzical look on their faces. Title reads: Frequently asked questions about M.E. Elaborating on terminology and topics I commonly refer to.

Frequently Asked Questions About Myalgic Encephalomyelitis

​As this community grows I get more and more questions about certain words or acronyms I use in my writing and graphics, so I thought I would create a page to answer some of the most frequently asked questions about M.E. I hope this will be helpful to you, please share any of the images from this page. It would help us raise awareness and eliminate stigma if more people understood this condition. ​Frequently Asked Questions About M.E. This page…

Read MoreFrequently Asked Questions About Myalgic Encephalomyelitis
Picture of large pink proteas, Title reads: M.E. Community News, News headlines and blog highlights from week 37 of 2019

This Week’s M.E. News – Week 37, 2019

  • 2

It’s time for some weekend reading! Curl up with a cuppa and let’s catch up on some community news.  I’ve summarised this week’s M.E. news as well as the latest updates from bloggers in the community. Enjoy! ​This Week’s M.E. News ​You can ​help raise awareness of M.E. by ​sharing any of the linked articles or ​sharing this page. Every share means more people see our content and that is just what we need if we want to spread accurate…

Read MoreThis Week’s M.E. News – Week 37, 2019
Announcing Char's Birthday Fundraiser in support of The MECFS Foundation South Africa. With the foundations logo in the middle.

Help Fund Vital Services For People With M.E. In Africa Through Char’s Birthday Fundraiser

  • 2

​Did you know that ​with ​a small donation you could help fund vital support for people with Myalgic Encephalomyelitis in Africa? It’s true! My birthday is coming up in a couple of weeks, and this year I’ve decided to dedicate it to support this vulnerable and chronically ill community in South Africa – and I’m counting on you to help me do it! Why Raise Money For ​My Birthday? ​I’m not sure who first came up with the brilliant idea…

Read MoreHelp Fund Vital Services For People With M.E. In Africa Through Char’s Birthday Fundraiser
Picture of green ferns, Title reads: M.E. Community News, News headlines and blog highlights from week 36 of 2019

This Week’s M.E. News – Week 36, 2019

​I’m running a bit late this week, but here’s a summary of the latest news ​on Myalgic Encephalomyelitis as well as blog updates from our fellow warriors. So, make yourself comfortable and let’s catch up! It seems to have been a busy week in our community, lots of new articles were published and there was the annual symposium at Stanford too. So I’m sharing a couple more articles than usual. Enjoy. ​This Week’s M.E. News If you enjoy any of…

Read MoreThis Week’s M.E. News – Week 36, 2019
Picture of purple clematis. TItle reads: M.E. community news. News headlines and blog highlights for week 35 of 2019

This Week’s M.E. News – Week 35, 2019

  • 2

​It’s time for this week’s M.E. ​news ​and ​blog updates from the ​community. So ​get ​a nice cup of tea or coffee and make yourself comfortable – let’s catch up! If you’re wondering about ways you can help raise awareness of Myalgic Encephalomyelitis, but are unsure how you could ​be helpful, know that one of the easiest ways to help is simply to share our content with the world. ​So share the link to this page (there are some one-click…

Read MoreThis Week’s M.E. News – Week 35, 2019
Picture of orange and red tulips. Title reads: M.E. community news. News headlines and blog highlights for week 34 of 2019

This Week’s M.E. News – Week 34, 2019

  • 2

​It’s that time of the week again! ​Pull up a chair and grab some snacks, we’ve got lots of exciting news and interesting blog updates from the M.E. community this week. Myalgic Encephalomyelitis is getting more and more visibility in the media and we have all sorts of allies stepping up to support our campaigns. These are exciting times! Remember, an easy way to contribute to our ​cause is simply to share articles and personal stories from our community. The…

Read MoreThis Week’s M.E. News – Week 34, 2019
A bed and bedside table with a lamp on it. Title reads: You might be an M.E. sufferer if... part 1, guest post by David A Graham.

You Might Be An M.E. Sufferer If… (Part 1) Guest Post By David A Graham

​I can’t read this without a ​smile on my face and shaking my head in agreement. In this three-part series our guest author, David Graham, shares ​his humorous ​take ​on life with Myalgic Encephalomyelitis. I ​think it also ties in wonderfully with our Effects Of M.E. awareness campaign. I hope it makes you ​giggle as much as I am! ​I’ve also created some graphics you can share online if any of David’s comments resonate with you. Click on any of…

Read MoreYou Might Be An M.E. Sufferer If… (Part 1) Guest Post By David A Graham
A picture of tall purple flowers in a garden. Title reads: ME community news. News headlines and blog highlights from week 33 of 2019

This Week’s M.E. News – Week 33, 2019

  • 2

​Grab a cuppa and get comfy – it’s time for some weekend reading! I’ve gathered together a ​collection of some of this week’s ​M.E. news ​as well as some lovely blog updates from the community. ​This Week’s M.E. News ​​The M.E. Association is hosting a new series focused on Very Severe M.E. Greg has been caring for his wife, Linda, for ​over 20 years and is a passionate advocate for those most severely affected by Myalgic Encephalomyelitis. In this ​​first…

Read MoreThis Week’s M.E. News – Week 33, 2019
An empty bed in a dark room, title reads: Poem, Severe M.E. is... What it's like living with severe Myalgic Encephalomyelitis

A Poem About Life With Severe Myalgic Encephalomyelitis

  • 8

​August 8 is Severe M.E. Awareness Day. A day to give a voice to the millions of people around the world who are living in isolation and torment due to the harsh effects of Myalgic Encephalomyelitis. 25% of people with M.E. are housebound or bedridden. The most severe living in darkness and silence for years… decades even. Neglected, misunderstood, vulnerable and severely disabled, yet they carry on fighting, waiting, hoping. Moment by moment. One day their breakthrough will come. One…

Read MoreA Poem About Life With Severe Myalgic Encephalomyelitis
Title reads My chronic illness Story, How it all started and how you can help, by Chronically Hopeful, Picture of Char lying in bed under blankets, shes in an ME flare wearing sunglasses and headphones

My Chronic Illness Story: How I Became Housebound With Severe M.E.

  • 10

​May is ME Awareness Month and once again I am participating in the ​virtual campaigns online to help raise awareness of this life-destroying illness called Myalgic Encephalomyelitis. Today I’m sharing my story. How did I become so terribly ill and housebound? When did it happen? And how long did I have to wait for a diagnosis? Here’s my ME story: I had a very busy and active life, teaching, going to church and Bible studies, tutoring and babysitting after hours…

Read MoreMy Chronic Illness Story: How I Became Housebound With Severe M.E.