a woman holding a laundry basket overflowing with clean laundry

Tiny Task Tuesday – Celebrating All I’ve Achieved In May 2021

  • 2

We’re one month into the Tiny Task challenge, so today I’m celebrating all that I’ve achieved this month. If you’re not familiar with Tiny Task Tuesday, it’s all about training ourselves to pace, break activities down into smaller tasks and create sanctuary at home, one tiny task at a time. You can read more about how it all began over here. I hope you will join me whenever possible, if you do, use the hashtag #TinyTaskTuesday so I can find…

Read MoreTiny Task Tuesday – Celebrating All I’ve Achieved In May 2021
A sofa with comfy cushions and a vase of dried flowers on a copper table. Title reads: Tiny task Tuesday, Creating sanctuary at home, one tiny task at a time

Tiny Task Tuesday – Creating Sanctuary At Home

  • 2

If you’re anything like me, living with a chronic illness means that you’re super low on energy on a daily basis and the chores at home just keep piling up. After months of looking at an untidy bedroom since moving the furniture around some time last year, I’ve decided it’s time to tackle the clutter and turn my room, and house, into the sanctuary it should be: tidy, organised, functional and not to mention beautiful and easy to maintain. How…

Read MoreTiny Task Tuesday – Creating Sanctuary At Home
Pills lying on a table top. Title reads: Supplements to manage chronic fatigue and pain. Find out which supplements have helped me the most

Supplements To Manage Chronic Fatigue And Pain

  • 2

I am often asked about the benefits of using supplements for Myalgic Encephalomyelitis or Chronic Fatigue Syndrome. People usually want to know which supplements I use for chronic pain or fatigue so they can have a better idea about where to start with their own supplement regime. Unfortunately, like everything else about this illness, we all respond differently, so what helps me might not help you the same way.  Herein lies the beauty of sharing our experiences though – some…

Read MoreSupplements To Manage Chronic Fatigue And Pain
10 Important Life Lessons learned from Chronic Illness, by Chronically Hopeful. A woman sits by the window, gazing out while holding a cup of tea. She has shoulder length hair and is smiling contemplatively.

10 Important Life Lessons I Learned From Chronic Illness

  • 4

Last year was a tough one for many of us, but looking back I ​realised that I have learned many important lessons which make me stronger and ​better equipped for the year ahead. So although 2018 was a year of very high highs and very low lows​, there were many ​lessons scattered among both the trials and the triumphs. ​This is the way life goes – it is never linear and it’s always changing – but we can always look…

Read More10 Important Life Lessons I Learned From Chronic Illness
In a dark room a hand is held up to block the light that is shining in. Title reads, Photophobia in ME and CFS. 20 Patients share their experience.

Photophobia: 6 Ways To Cope With Light Sensitivity

  • 10

​Have you ever experienced that moment of intense pain in your eyes and head when you’ve opened the curtains on a bright and sunny day? Anybody who has experienced a migraine or even a hangover would likely understand what I’m talking about too. Although photophobia or light sensitivity ​might ​seem quite common among ​the general population, it can be quite debilitating when combined with a chronic illness like ME Most people struggle with glare and direct sunlight in their eyes,…

Read MorePhotophobia: 6 Ways To Cope With Light Sensitivity
A pile of boxes stacked up next to a radiator. Title reads Moving to a new house, plus 12 tips to make moving easier

Moving To A New House – Plus 12 Ways To Make Moving Easier If You’re Chronically Ill

  • 8

This summer was a season of great change for our family. After little more than a year in our flat, my dad had found us a lovely big house with a garden and we were packing again. Moving house can be quite stressful for the healthiest of people, so it can really be a nightmare for somebody with a severe chronic illness like ME. We actually loved our flat, it was enough for my sister and I, it ticked most…

Read MoreMoving To A New House – Plus 12 Ways To Make Moving Easier If You’re Chronically Ill
A crocheted twiddle muff with tassels and buttons on it lying on the carpet. Title reads, How to crochet s twiddle muff

How To Crochet A Twiddle Muff, A Handmade Sensory Toy To Relieve Anxiety

  • 18

Most people with chronic illness have experienced anxiety or panic at some point.  It’s not always a condition on it’s own, but commonly is a symptom of other illnesses that affect the autonomic nervous system. There are many ways to reduce anxiety and stress, but today I will be sharing a fun and creative craft project that will help you restore calm to your world – the Twiddle Muff! If you’ve ever met somebody with mental health or even chronic…

Read MoreHow To Crochet A Twiddle Muff, A Handmade Sensory Toy To Relieve Anxiety
Char pulling a funny face. Title reads: How to have M.E. successfully. A humorous look at life with Myalgic Encephalomyelitis.

How To Have ME Successfully

  • 11

I came across this fantastic list of guidelines for how to live successfully with Myalgic Encephalomyelitis and just had to share it. It’s so refreshing to ​read a light-hearted account of life with this ​horrible illness. I’ll be sharing this humorous look at life with M.E. below as well as explain the realities of each point in more detail to help with raising awareness. Also, I’ve created this image you can share on social media:  ​Pin This! Do not consider…

Read MoreHow To Have ME Successfully
Photo of hundreds of empty pairs of shoes in a town square representing th millions of ME/cfs patients missing from society. Title reads, How you can help the Millions Missing, Myalgic Encephalomyelitis awareness and advocacy,by Chronically Hopeful

Advocacy And Fundraising Ideas And Resources

  • 18

We in the ME community are so grateful that you are interested in supporting our cause. Thank you! I hope that the information on this page will inspire you to action, giving you ideas and resources to help you help us. We need all the help from healthy allies that we can get! The quickest way to support our cause is to donate towards advocacy campaigns or research. For a list of global organisations which you can support, click here.…

Read MoreAdvocacy And Fundraising Ideas And Resources
Title reads Join The MEcfs Community, Social group for ME & CFS patients and carers. Photo of blue forget-me-notspin by Chronically Hopeful

A Community for ME/CFS Bloggers and Patients

  • 2

When I was first diagnosed with ​Chronic Fatigue Syndrome, I felt lost. It’s a condition I had never heard of before and my doctor didn’t seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by! For this reason I have created a community online for people with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) and their carers.…

Read MoreA Community for ME/CFS Bloggers and Patients