a field of forget-me-not flowers

ME/CFS Awareness Pictures To Share, Part 5

Every Wednesday the ME community comes together on Twitter to raise awareness of this debilitating chronic illness. We share recent media coverage, research news, our personal experiences and more. Making new connections and supporting each other. I often join in and share various ME awareness pictures during that hour. ​Below you will find the graphics I shared during the last ME Awareness Hour. I hope this will help you understand what life is like with ME If you have learned…

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Jan 2018 Reflecting Aiming Expanding Focusing Refreshing BLOG

Reflecting, Aiming, Expanding, Focusing, Refreshing

I’m so happy to finally be taking part in A Chronic Voice’s monthly link-up! I have been silently following along from the shadows for months, then last month I finally wrote the post, but of course I waited till the very last day and actually missed the deadline by 4 hours because Sheryl works on Singapore time.  This time I’m doing a bit better, I am writing this post with 6 days to spare. Wow, I must say I am…

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ME Awareness Hour

ME/CFS Awareness, 10 Jan 2018

Sandwiched between 2 hot water bottles, under layers of clothes and blankets, medicated – multiple times, in the dark with sunglasses on, my phone’s screen dimmed and the blue light filter on so that I can bear looking at it for a few minutes at a time. This was me yesterday after I had a nap on the sofa where I toppled over after lunch, in a bundle of pain and tears as the previous night’s insomnia caught up with…

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First outing in 5 months BLOG

My First Outing in 5 Months

I am so happy to have visited the beautiful Lake District this holiday! As anybody with a chronic illness can tell you, holidays are a stressful time that we often dread. With many more people around, an increase in noise, activity and an abundant selection of unhealthy food choices, it is inevitable that we will experience an increase in unpleasant symptoms and will at some point need to isolate ourselves in order to rest and recover. I am fortunate to…

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Blog Link-up Dec

December 2017 Chronic Voice Blog Link-up

As this year draws to an end, I have decided to start something new here on the blog.  One of my favourite parts of blogging is taking part in link-ups or blog parties. If you’ve never heard of them, they are basically the virtual equivalent of a meet-up in a coffee shop with other bloggers online. Usually hosted by one or more bloggers, it is a collection of links, which are really invitations, to come visit other blogs who all…

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Stalked and denied benefits BLOG

Chronically ill being stalked and denied benefits

On this day last year something very wrong and so unfair came to my attention: People with disabilities, who are deemed unfit for work by doctors and occupational health assessors, are being denied benefits because of their Internet activity. They’re being stalked, not only online, but in real life too! In this post I will elaborate on some of my thoughts I’d shared online at the time. My heart goes out to anybody who has suffered unnecessarily due to such…

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A career woman sits in a corridor with her head in her hands

Outcome: Unfit For Work

I love Facebook memories. Each day you wake up to find a lovely look back at how much things have changed over the past year. Some people find this depressing or sad, but I love looking back. I don’t find it sad, I find it interesting and I enjoy being reminded of all I’ve made it through and how far I’ve come. Even if I am still very ill and inactive, much has changed through the years, but it’s only…

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Gift Guide, What to buy for chronically ill friend, ChronicallyHopeful

Gift guide: what to buy for your chronically ill friends, part 3

I’m so excited to share this third part of my spoonie gift guide, I hope you are enjoying this series as much as I am! ​These gifts would be great for birthday presents or a house warming gift or even Christmas too. This series will continue to grow as I think of other cool gift ideas, watch this space!  If you’ve missed any of my other gift guides, you can find them all here. Happy browsing! ​Disability Aids To Help…

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colourful flouting balloons with title, Gift Guide, what to buy for your Chronically Ill Friends

Gift guide: what to buy for your chronically ill friends, part 2

I know many people find such joy in shopping for gifts. They start shopping months in advance and they buy the most thoughtful, personalised gifts anybody would love, that’s not me. I’m so unorganised!  If you’re anything like me, you’ve waited till the last minute to do your gift shopping. Whether it’s for a birthday, Christmas or a house warming gift, I just cannot get it done unless it’s right around the corner and then I might just give up…

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A bowl of colourful confetti spilled on a wooden table. Title says, Gift guide, what to buy for your chronically ill friends.

Gift Guide: What To Buy For Your Chronically Ill Friends, Part 1

It can be quite tricky deciding what to buy your friends with chronic illness because of all the limitations and intolerances we often have. What would be useful and not harmful in their condition? There are many lists out there, and they’re all slightly different depending on the condition they’re tailored for, so I’m making a list of the things I would have loved to receive over the years of being housebound. I have chronic fatigue and chronic pain as…

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