M.E. Awareness Campaign: The Effects Of Myalgic Encephalomyelitis

A bed with lots of pillows in front of a blue wall. Title reads: The Effects of M.E. awareness campaign featuring quotes from people with M.E.
This entry is part 2 of 3 in the series ME/CFS Awareness

In ​2017 I created the "​​Effects of ME" campaign for ME Awareness month in May. Quotes ​were collected from patients about how ME affects their daily life and I then used those quotes anonymously to create impactful graphics which the community could share during the online awareness campaigns.

The campaign continues to run to this day, with new quotes ​trickling in all the time. The graphics have been very well received in the M.E. community and ​continue to be shared widely​. People relate to the quotes and it makes expressing their experience so much easier.  I hope you will find this collection useful for your own advocacy efforts too.

More...

​The Effects Of M.E. ​Quotes

ME Awareness picture, Title reads, Short term memory loss, when "what was I saying?" becomes your most used phrase. Just one of the effects of Myalgic Encephalomyelitis.
ME Awareness picture, Title reads, Post-exertional neuroimmune exhaustion, when I cant do a thing today because Idid a thing yesterday. Just one of the effects of Myalgic Encephalomyelitis.
ME Awareness picture, Title reads, Irregular Heart Beat, When you get heart palpitations from simply brushing your teeth. Just one of the effects of Myalgic Encephalomyelitis.

Click on the above examples to zoom in.

​You are welcome to share these images online or print them out to share at events.

How It Works

​You simply fill in a short form​ online, it will ​probably take​ ​less than 5 minutes.

Then, once I've ​received your contribution, I will create a graphic with your words and add it to the public collection.

If you'd like ​to submit your quote to the public collection, click the button below:

PLEASE NOTE: ​Please keep in mind that I make these graphics manually, I am just one person and I too have Severe ME, so your quote may not appear in the collection right away. ​I reserve the right to discontinue ​this campaign at any time. I thank you for your patience and understanding. - Char (Chronically Hopeful)

​​Us​ing These Graphics For Advocacy

​Please note that by ​submitting your quote, you agree that your words will be shared ​anonymously, by me and others, on social media and possibly on printed posters as part of the ​M.E. awareness campaigns.

Please visit this page to read the full terms of use if you have intentions of using these graphics anywhere other than on social media.

​Your ​Privacy

​This campaign is completely anonymous, I will not use any of your identifying information on the graphics I make.

If you do not wish to use your real name in the form, you may use a nickname or initials.

Your email address will not be shared publicly, it is only needed to contact you about your ​quote, if necessary, and to send ​the completed ​graphic to you​.

Translating These Campaigns

I am working with a group of volunteers who are translating my graphics into various languages. I am so excited about this project! It will equip so many more people to raise awareness by helping them express their experience of M.E. in their own language.

The idea came about after I was approached by a few different M.E. advocates asking if they could translate my posts and graphics to better connect with their audiences. So I opened it up and asked for volunteers to come forward and ​they have!

​The work is only just getting started, but I'm hopeful that by the time Awareness Month 2020 rolls by, we will have a diverse collection of awareness resources in various languages. In the meantime, as each campaign is translated, I will add links to the galleries here as well as create albums on social media for easy sharing.

Volunteer Translators Needed

a collage of 3 awareness pictures. Title reads: Translators wanted. help us reach more people by translating our graphics. Would you like to volunteer?

If you speak another language and would like to volunteer as a translator, please email me and I'll send you all the details.

I understand that health might be an issue for many, so rest assured, you can work at your own pace. Your health must come first.

​Click here to email me!

How To Print Your Poster For Events

Many have asked about printing these ​graphics out to display at awareness events. So I have tested it, the poster came out nice and big, covering most of the page. Here's how I did it:

Double click the image to open it, then select the following menu options

  1. ​File
  2. ​Print​...
  3. ​​Select A4 (or whatever your page size is)
  4. ​Select Fit To Page​ (so it fills the page without spilling over)
  5. Print

Another option would be to insert the picture into a Word document, adjust size, margins, etc and print it.

Contribute ​To Other ​Awareness ​Campaigns

I have a few other awareness campaigns you may be interested in contributing towards. ​Below you will see examples for each campaign and a link to find out more. I hope you will consider contributing to each one.

​Personalised #MillionsMissing ​Posters

Char has been missing from teaching, nature walks, independence, going to the beach, going to church, shopping, family holidays, meals out with friends, cooking and daily baths since 2015. MillionsMissing.org, Char lying on the bed, feeling ill.
Joel's been missing from full time education, cubs, football, swimming, afamily days out since 2017. Picture of Joel luing down, looking exhausted and sad.
Stefan has been missing diving, going outside, entrepreneurship, seeing friends and family, sun and rain, planning his life since 2012. Picture of Stefan deep sea diving before he fell ill.

In ​2019 I created the "​Personalised Millions Missing Posters" campaign for ME Awareness month in May. People were asked to share their stories and photos, how long they've been ill and what they are missing out on due to M.E. ​Over 360 people with M.E. sent in their ​stories and the collection keeps growing! 

The "Severe ME Is..." Campaign

Severe M.E. is frustratingly limiting in every way.
Severe M.E. is a thief of my freedom, human rights, credibility, etc.
Severe M.E. is isolating, lonely, hell.

In 2018 I created the "Severe ME is..." campaign for Severe ME Day in August. For this ​campaign, the severely affected are asked to complete the sentence "Severe ME is..." in their own words. The response I got was heartbreaking. A very ​honest ​account of the suffering this illness causes. ​Participants ​remain anonymous and must be ​housebound or bedridden ​to participate in this series.

These images are free to share online and can be found here. ​

TERMS OF USE: ​click here​.

Thank You!

​I'd like to thank ​all who have contributed to these awareness campaigns, whether online or at live events. Your willingness to open up and be honest about the devastating effects of this condition is truly appreciated. I know your stories are helping many. They help the public understand us better and this helps eliminate stigma, abuse and neglect. It also helps other people with M.E. know that they are not alone. So thank you for sharing.

​Share Your Whole Story

​If you'd like to share your whole story in more detail, I'd love to feature you as a Warrior of The Week here on Chronically Hopeful and accross all my social media channels.

Visit this page to see how you can be featured.

Once again, you may remain anonymous if you prefer not to be identified when sharing your story.

3 Thumbnails of awareness pictures, Title reads, M.E. Awareness Pictures To Share. Visit ChronicallyHopeful.com for advocacy tools to raise awareness of Myalgic Encephalomyelitis.

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​More ​​About M.E. Awareness ​Campaigns

#MillionsMissing Personalised poster for ME awareness. How to get your own millions missing poster
ME Awareness Hour
A collage of awareness pictures, Title reads: Where to find impactful M.E. awareness pictures
ME Awareness Hour
ME Awareness Hour
An empty bed in a dark room, title reads: Poem, Severe M.E. is... What it's like living with severe Myalgic Encephalomyelitis

​Thank You For Stopping By!

​​For more conversation on this topic, why not ​join me on
My Chronic Life Pages: Facebook | Instagram | Twitter | The ME/CFS Community 
My Art & Crafts Pages: Facebook | Instagram | Twitter | My Art Shop 
​M.E. Awareness Pictures: Facebook | Instagram | Twitter | Gallery 
​I'm also on: Pinterest | Bloglovin’ 
My Amazon Wishlists: ​Art & Hobbies | Books | Health

Donate to Char's Birthday Fundraiser to support The MECFS foundation of South Africa
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