Grab a cuppa and get comfy – it’s time for some weekend reading! I’ve gathered together a collection of some of this week’s M.E. news as well as some lovely blog updates from the community. This Week’s M.E. News The M.E. Association is hosting a new series focused on Very Severe M.E. Greg has been caring for his wife, Linda, for over 20 years and is a passionate advocate for those most severely affected by Myalgic Encephalomyelitis. In this first…
August 8 is Severe M.E. Awareness Day. A day to give a voice to the millions of people around the world who are living in isolation and torment due to the harsh effects of Myalgic Encephalomyelitis. 25% of people with M.E. are housebound or bedridden. The most severe living in darkness and silence for years… decades even. Neglected, misunderstood, vulnerable and severely disabled, yet they carry on fighting, waiting, hoping. Moment by moment. One day their breakthrough will come. One…
May is ME Awareness Month and once again I am participating in the virtual campaigns online to help raise awareness of this life-destroying illness called Myalgic Encephalomyelitis. Today I’m sharing my story. How did I become so terribly ill and housebound? When did it happen? And how long did I have to wait for a diagnosis? Here’s my ME story: I had a very busy and active life, teaching, going to church and Bible studies, tutoring and babysitting after hours…
May is #MEAwarenessMonth and I thought, since many of us cannot go to the live #MillionsMissing events in person, I’d like to help my fellow people with ME (pwME) to raise awareness online by offering you personalised Millions Missing posters! Personalised Millions Missing Posters! Here are a few examples of what they look like. Scroll down to find out how to get your own You are welcome to share these images online or print them out to display at events.…
I’d like to speak about my own mental health. I feel like some people misunderstand my condition, so I wanted to address the matter directly. Yes, I have a severely debilitating illness. Yes, I practically live in bed. No, I cannot go out and I cannot have visitors coming over without paying for it, but I am okay. Seriously. I do not suffer from depression or anxiety or feel upset, or anything like that, about being ill and housebound. But…
Last year was a tough one for many of us, but looking back I realised that I have learned many important lessons which make me stronger and better equipped for the year ahead. So although 2018 was a year of very high highs and very low lows, there were many lessons scattered among both the trials and the triumphs. This is the way life goes – it is never linear and it’s always changing – but we can always look…
Have you ever experienced that moment of intense pain in your eyes and head when you’ve opened the curtains on a bright and sunny day? Anybody who has experienced a migraine or even a hangover would likely understand what I’m talking about too. Although photophobia or light sensitivity might seem quite common among the general population, it can be quite debilitating when combined with a chronic illness like ME Most people struggle with glare and direct sunlight in their eyes,…
This summer was a season of great change for our family. After little more than a year in our flat, my dad had found us a lovely big house with a garden and we were packing again. Moving house can be quite stressful for the healthiest of people, so it can really be a nightmare for somebody with a severe chronic illness like ME. We actually loved our flat, it was enough for my sister and I, it ticked most…
Have you been searching for graphics to easily share with friends and family what Myalgic Encephalomyelitis is really like? Would you like to share relevant and informative infographics about ME? Find pictures that will give visual impact and get the point across without wasting your energy and time explaining? I’m so excited to introduce ME Awareness Pictures to you today! ME Awareness Pictures is a community resource where we can collect and share ME awareness pictures from all over the…
Have you ever been out in town and seen somebody on a mobility scooter or wheelchair get up and walk in the shop? Or maybe you’ve seen somebody who looks perfectly healthy get out of a car they have just parked in the spot for disabled people? If you are anything like I was before I fell ill, you might think these people are faking and milking the system for benefits and attention, but you’d be wrong, just like I…