Tag Archives for " 2017 "

When moving to a foreign country feels like coming home

Moving to a foreign country, homecoming BLOG

It was an icy November evening in 2010, exactly 7 years ago today, when my best friend and I hopped on a plane to London from Milan. I had spent the past ten years living in Northern Italy, literally all of my adult life, and this was the beginning of a new chapter. We landed shortly before midnight.

We both had been unhappy in our jobs for various reasons for quite some time, so when we lost our jobs, which I now see as a blessing although at the time I was devastated, we started looking outside of Italy for new opportunities. By the time we flew over we had researched housing, grocery lists, medical services, transport and even further education. We felt we knew enough to get by and reach our goals and it helped that they speak English in England – that just makes everything easier!

What we didn’t have when we got on that plane was work or accommodation. We were arriving in a new country with only a cabin bag each and hope for a brighter future – a huge leap of faith.

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Shaking And Trembling With ME/CFS

Feet in a bath tub, water moving. Title reads Shakes and Tremors with ME/CFS. Myalgic Encephalomyeitis causes visible body tremors.

One of the most frustrating and debilitating symptoms of ME/CFS is the shaking and trembling after minimal exertion. Something that healthy people might get after a strenuous exercise. I was lying in the bath relaxing last night when I felt the shakes coming on. This is what I get for walking just a few steps to the bathroom and getting undressed. I started feeling a bit of the internal tremors at that point, I imagined it might come to the shakes, and then as I lay in the tub to rest, before washing, they suddenly started up. (see the video clip below)

This is just the start, it then takes over my whole body and that's when holding my phone, or anything else for that matter, becomes very hard.

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Keeping An Eternal Perspective

Leaves in the pouring rain. Title Reads, keeping an eternal perspective despite our circumstances.

I absolutely believe that we are safer with God in any storm than we would be anywhere else without Him. It's hard when you focus on the pain and suffering in this world or even your own personal trials to remember that this is just a fraction of eternity. This will eventually pass, it is only a temporary part of your life.

Keeping ​an eternal perspective allows you to see just how small and temporary every trial is in the larger ​scheme of things. That doesn't mean ​it doesn't hurt or doesn't scare you or make you feel helpless at times. It just means that you will never lose hope because you know that this too shall pass.

There have been a few occasions since ​my onset of ​ME/CFS that I have broken down from frustration and utter physical weakness. I've even had a few panic attacks, and every time I have a breakdown or meltdown, I remember the first one because it was incredible.

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MAIMES: Medical Abuse in ME Sufferers

Join the MAIMES campaign, Chronically Hopeful #MEcfs #pwME #ChronicIllness

As anybody with ME/CFS and their carers will know, many doctors and health care practitioners still treat ME as a psychological disorder, when in fact it has been proven to be physiological. Patients have been dismissed for decades, disbelieved, misunderstood and symptoms ignored.

The current treatment recommended for ME/CFS patients is CBT (Cognitive Behaviour Therapy, a type of psychologically based talk therapy) and GET (Graded Exercise Therapy, a controlled exercise program). This came about due to findings that came out of the PACE Trial which has been reviewed recently and found to be based on flawed principles. The whole trial was unscientific and skewed, not at all a sound basis for deciding how to treat ME/CFS.

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ME/CFS Awareness, 15 Nov 2017

ME Awareness Hour

As you might know by now, I spend every Wednesday evening on Twitter, along with many other ME/CFS warriors, taking part in ME Awareness Hour. It runs from 8-9pm (London time) every Wednesday evening.

We tweet about what life is like with this life draining illness. We tweet and retweet for an hour, hoping to to make our hashtags trend on the front page of Twitter so we can get the most attention possible. I hope you will join us, even if you only retweet other people’s tweets, every bit helps!

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